UBC News

Can Epidermolysis Bullosa Be Cured? What Families of EB Children Need to Know

Episode Summary

Epidermolysis bullosa has no cure yet. Discover the hidden financial and emotional toll on families, the daily realities of wound care, and why specialized support and medical supplies can mean the difference between suffering and survival for children with EB. Learn more at https://nobabyblisters.org/

Episode Notes

Have you ever wondered what it's like to care for a child whose skin is as fragile as a butterfly's wings? Today we're talking about epidermolysis bullosa—EB for short—a rare genetic disorder that affects families around the world. And here's the tough truth right up front: there's currently no cure.

No Baby Blisters City: Colorado Springs Address: 731 Chapel Hills Drive Website: https://nobabyblisters.org/