Discover the devastating realities of epidermolysis bullosa, a genetic skin disorder with fatal risks. Learn about new awareness efforts, daily care challenges, and how families manage blisters, infections, and life-threatening complications. Access more information at https://nobabyblisters.org/
Welcome back, everyone. Today, we're tackling something really important, a new awareness campaign focusing on the fatal risks associated with epidermolysis bullosa, or EB. This is a genetic disorder that many people haven't heard of, but for families affected by it, the challenges are immense. I'm joined by a guest who's been working closely with families living with this condition. Thanks for being here.
No Baby Blisters City: Colorado Springs Address: 731 Chapel Hills Drive Website: https://nobabyblisters.org/