UBC News

EB Blistering Disease: What Fundraising Campaigns Really Do To Help Children

Episode Summary

Learn more about a rare genetic disease that traps babies in bandages and extreme pain—and why traditional funding systems have failed them. We explore the urgent need for both immediate aid and innovative cure research. More at https://nobabyblisters.org/

Episode Notes

Have you ever heard of a disease so rare and devastating that babies can lose their skin from just a simple touch? Today, we're talking about Epidermolysis Bullosa—or EB—a genetic blistering skin disease that's almost invisible to the public eye. No Baby Blisters City: Colorado Springs Address: 731 Chapel Hills Drive Website: https://nobabyblisters.org/