UBC News

Epidermolysis Bullosa Has No Cure — Here's How Families Cope Every Day

Episode Summary

Epidermolysis Bullosa is a rare genetic disorder that leaves children with skin so fragile it blisters from the lightest touch. This episode explores the types, daily challenges, and latest treatments families need to know about. To learn more, visit https://nobabyblisters.org/#fast-cure-plan

Episode Notes

Welcome back to the podcast. Today we're tackling something that affects thousands of families but often goes unnoticed—Epidermolysis Bullosa, or EB. It's a rare genetic disorder that causes the skin to be incredibly fragile. We're talking about skin so delicate it blisters at the slightest touch. Joining me today is someone who's deeply familiar with this condition and how families can work through it. Thanks for being here. No Baby Blisters City: Colorado Springs Address: 731 Chapel Hills Drive Website: https://nobabyblisters.org/