UBC News

Living with Epidermolysis Bullosa: What EB Families Want You to Know

Episode Summary

https://nobabyblisters.org/updates/Discover the hidden reality of Epidermolysis Bullosa, a rare genetic disease where even a hug can cause life-threatening blisters. Hear powerful family stories and learn why affordable cures remain elusive for thousands of suffering children worldwide.

Episode Notes

Have you ever heard of a disease where a simple hug could be dangerous? Today we're talking about something that affects about five hundred thousand people worldwide, but most of us have never even heard of it. Epidermolysis Bullosa, or EB. No Baby Blisters City: Colorado Springs Address: 731 Chapel Hills Drive Website: https://nobabyblisters.org/